For almost six years I have been working as a volunteer for the Cystic Fibrosis Foundation. As soon as I found out Joey had CF, I Googled CF to see if they had a walk for us to do. Fortunately, they have a walk every spring here in Fort Wayne. The first year we just walked as individuals. The following years, we walked as Team Jose. I put so much into these walks because I feel like they are so important to the CF community. If we don't raise money they won't have the funds for research to find a cure for CF. I also think it's a way to show our support to those with CF and to those who have lost their life to CF. As most know, Joey passed away on April 30, 2008. I am continuing to do the walks and raise money. I don't want other families and CF patients to have to go through what Joey and his family and friends did.
Unfortunately, some people don't see the good I am doing. I got a few videos from a friend on Facebook and had decided to email them out to our CF community. I had met a mother last year when Joey passed and we had emailed back and forth a few times. She had lost two sons to CF. She was really nice and it was good to talk to her. So, after emailing out the second video, I got an urgent email from her saying that she was doing pretty well with her depression until I sent those videos out. She said maybe I should be more compassionate to those who have gone through losing someone with CF. She said I should think before I hit send. I was mortified. I never intended to hurt anyone or her for that matter by sending out videos that only can help raise awareness. However, I was not happy that she accused me of not having been through the pain of losing someone to CF. I didn't email her back because I didn't want to argue with her or make her feel any more anger. I just hope she can find peace someday.
I know what I am doing is good and I guess like that say, you just can't please everyone. I will continue to try.